I’m a woman. It doesn’t define who I am, but it shapes my experiences. This is the story of my suffering. This is the story of my journey to overcome my incurable illness. This is a story of hope.
In my blog, I talk about my experiences, how my incurable disease affected how I interact with the world and how the world interacts with me.
You are not alone. I want our plight to be heard. There is still a lot of prejudice and ignorance associated with the disease that makes its victims feel abandoned, misunderstood, confused and on occasions mistreated.
Follow my blog and share the posts to spread awareness. Your comments are critical so please be vocal. You can also share your experiences with me via the following channels:
I have stage IV complex endometriosis.
It took 11 years for my diagnosis. I’d been misdiagnosed with polycystic ovary syndrome; low progesterone level; and being a woman (treatment suggested: “just deal with it”).
In June 2014, I was finally and firmly diagnosed following an MRI.
I was referred by a musculoskeletal specialist, following a mystery pelvic and lower back complaint which I thought to be a sports injury. By this time, I’d been in chronic pain for seven months and the quality of my life was seriously affected.
My symptoms include painful and heavy periods, clotting, abdominal pain, back pain, other body pain, chronic fatigue, low moods, irritable bladder, irritable bowel, bleeding after sex, painful sex, bleeding throughout the month, and infertility. I have experienced chronic pain, including over a number of years at levels 3-5, with acute pain of up to 9 on the pain scale of 1-10.
I underwent five laparoscopic surgeries between 2014 and 2020. These included treatment of endometriosis and adhesions in the abdominal cavity, on the outside wall of the uterus, on the bowel, and on the appendix, resulting in an appendectomy, as well as multiple endometriomas on my ovaries.
I thought that my experiences were shared by other women. I thought all other women were braver than me for enduring their monthly pain in silence and getting on with their lives so easily. Now I know that that I’m not like other women. Now I know that I’m not well. I have endometriosis. Welcome to my world.