Ah, that old friend of mine. It’s with me when I’m feeling great, and when I’m feeling low. It’s with me when I’m at home, and when I’m at work; when I’m with friends and when I’m alone. It’s my constant companion. THE PAIN. ENDO-PAIN. Let’s talk about endo-pain: the chronic pain associated with endometriosis.... Continue Reading →
“Oh no!” I’m bawling, “I sat by the fire for five minutes. I just didn’t think.” “You did what? I don’t understand. Calm down and tell me what happened.” “Bwaaaaaaaa, I sat bwa bwa bwa by the fire.” He’s looking at me puzzled. I’m now at a fully blown crying fit. You see, seven days... Continue Reading →
Do you have endometriosis? Do you have endo-fatigue? Let’s run a little test: Are you exhausted right now? Do you frequently wake up tired after a ‘good night’s sleep’? Do you frequently feel you have no ‘spare’ energy despite resting a lot? Did you say yes to at least one of the questions? Let me... Continue Reading →
“Yes, here it is. Yes, it does look like a dermoid cyst.” I emerge from behind the screen. I must be looking a bit worried, because she reassures me keenly that “they’re not that uncommon”, “it’s nothing to worry about really”, and I should “google it”. Back home, I’m on my iPad googling. “DERMOID” Wikipedia – because let’s be properly scientific about this – informs me that a dermoid cyst is a teratoma of a cystic nature that contains an array of developmentally mature, solid tissues. A solid cyst? Ok. Doesn’t sound that bad. It’s a what? A teratoma? I google that. “TERATOMA”
I’m in a small room whose walls are covered with notices about hygiene; in the corner, there are two bins, one black and yellow, also plastered with notices. Next to the bed I’m splayed on, there is a machine with a monitor. Another monitor hangs from the ceiling in front of me. “I’ll take you... Continue Reading →
The business of making children is complex. The business of having children is extraordinarily more byzantine. The business of not having children is a different matter altogether. And the business of not (yet) having children, if you’re an endometriosis sufferer, potentially a source of such omnipresent and all-pervasive misery, despair, bitterness, despondency and torment that its essence cannot be expressed in words. It’s strange how life works out. One day you’re living your life relatively happy, whatever happiness is, the next your doctor is breaking the news that you have a disease that affects your fertility. Now the painful periods make sense, so you feel reassured on some level, but on a different level a new kind of worry also enters your brain. Will endometriosis affect my ability to have children? Will endometriosis affect my fertility? You freak out. You become desperate. All you can focus on is your childlessness, or inability to have more children, or other people having children. You lose your ability to connect with others as you become increasingly single-mindedly focused on that one aspect of your existence.
My brain is frazzled. Regularly. And most of the time, there seems to be no solution. So I stew. I stew when I should be working. I stew when I’m out with friends. I stew when I should be sleeping. So I don’t sleep. I don’t do anything properly. I’m not mindful of anything. I... Continue Reading →
The business of making plans by an endometriosis sufferer is likely to be fraught with many potential pitfalls. The timing of your period, the need for frequent loo breaks, the likelihood of pain, tiredness, and inability to carry your own luggage, all need to be taken into account. But it is possible to plan and it is possible to find the window of opportunity. Here’s to life at it’s best, whatever that is.
Let me show you how project management techniques can help the chronically ill achieve more. Let me show you how by imitating professional project managers, you can and will successfully overcome the daily tests and trials that living with a debilitating chronic disease so often entails. What is your story? What have you achieved despite your crippling disease. How did you overcome the challenges of living with a long-term health condition? How did you interact with others to get them help you? What motivated you to keep going even though every fibre in your body was telling you to give up?
“Don’t worry.” Oh, ok then. Ta Da. I didn’t realise it was this easy. All I have to do is not to worry. Bingo. I’ve got it. That’s it. Eureka. My life’s totally perfect now. Thanks for your help. “Just stop worrying. It’s not helping.” So whilst you’re at it, tell me precisely how and... Continue Reading →