I’m in a small room whose walls are covered with notices about hygiene; in the corner, there are two bins, one black and yellow, also plastered with notices. Next to the bed I’m splayed on, there is a machine with a monitor. Another monitor hangs from the ceiling in front of me. “I’ll take you... Continue Reading →
With Endometriosis, as with any serious illness, it's important to stay safe. To raise awareness of the disease and to encourage you, my fellow sufferers to take care of yourselves, I've collaborated (free of charge, this is not an advert) with the the ID Band Company on an article titled An endometriosis sufferer's fight to raise awareness. I'd love to learn if any of you already sports a medical band, necklace or some other form of medical alert identification. Personally, I'm loving the Hedlee Beaded Collection - who said that medical ID bands should be boring? - bring on the bling! This is serious stuff. As always, take care of yourselves.
The business of making children is complex. The business of having children is extraordinarily more byzantine. The business of not having children is a different matter altogether. And the business of not (yet) having children, if you’re an endometriosis sufferer, potentially a source of such omnipresent and all-pervasive misery, despair, bitterness, despondency and torment that its essence cannot be expressed in words. It’s strange how life works out. One day you’re living your life relatively happy, whatever happiness is, the next your doctor is breaking the news that you have a disease that affects your fertility. Now the painful periods make sense, so you feel reassured on some level, but on a different level a new kind of worry also enters your brain. Will endometriosis affect my ability to have children? Will endometriosis affect my fertility? You freak out. You become desperate. All you can focus on is your childlessness, or inability to have more children, or other people having children. You lose your ability to connect with others as you become increasingly single-mindedly focused on that one aspect of your existence.
Premio Dardos Award.
On the 28th March 2015, many brave souls across the world, dressed in fifty shades of yellow and pink, some with funky braids and ribbons in their hair, some with pink knickers over their trousers, and some in armoury, but all with a smile on their face, did just that. They did it to raise awareness of a disease that is silent. A disease that people don’t want to hear about. A disease that makes even those suffering from it often feel too embarrassed to break that silence and speak out.
I recommend to you all a pretty cool blog from a good writer. The topic is Endometriosis! and this is her story and her way to help and spread Awareness! Her topics even though cover the thoughts of pretty much every Endometriosis suffer, including myself shows that we are not alone in our thoughts, nor are we alone in this fight.
Below is a link to her blog where you will find many interesting reads about life with Endometriosis.
My brain is frazzled. Regularly. And most of the time, there seems to be no solution. So I stew. I stew when I should be working. I stew when I’m out with friends. I stew when I should be sleeping. So I don’t sleep. I don’t do anything properly. I’m not mindful of anything. I... Continue Reading →
The business of making plans by an endometriosis sufferer is likely to be fraught with many potential pitfalls. The timing of your period, the need for frequent loo breaks, the likelihood of pain, tiredness, and inability to carry your own luggage, all need to be taken into account. But it is possible to plan and it is possible to find the window of opportunity. Here’s to life at it’s best, whatever that is.